9/27 (Day -4)
My weight was down to 191. It was 194 when I was admitted but it could be due to lack of fluids. The chemo is starting to take its toll and my appetitite is slowly dropping. I’m still eating but it’s a chore.
This was the last day of the busulfan. Tomorrow I start the cytoxan, which I understand is just as bad. I’ll have it post transplant as well.
Blood pressure started creeping up today but we’re just monitoring it as it’s not crazy yet. Just something that has creeped up since I’ve been here. I’d wager on just lack of sleep and anxiety about everything. It’s tough. I would have relished days to myself soemtimes but this is far from it.
12am vitals
4am vitals and labs
6am blood products if necessary
8am busulfan and vitals
9am breakfast
10am antifungal
12pm vitals
1pm lunch
2pm maybe i get a nap
4pm vitals
7pm nurse change and night meds
8pm vitals
10pm I get in bed
12am vitals
It’s non-stop. There’s a few blocks from time to time that I get by myself but not often. It’s a steady process to check and make sure I’m doing okay.