My Dad

December 6, 2021 0 Comments

Today is my dad’s birthday.  He would have been 76 today.  He passed away 2 years ago.  Some days it still hits me hard that he isn’t here.  Today is one of those days.  I miss his strength and his calm presence.   My dad never really had much to say but his words were always …

#11 Be Flexible

December 2, 2021 0 Comments

My original admission date for my bone marrow transplant date had been set for May the 4th (the force was obviously not with me).  I had set my last day of work and was going to take a few days to pack and spend with family before I embarked on a thirty day stay in …

60 days post transplant

December 1, 2021 4 Comments

Yesterday was Day +60 from my bone marrow transplant (BMT).  We’ll retest my chimerisms to see how well the engraftment is going and hopefully see some improvement in my T-cell percentages.  My platelets have dropped a bit so there has been some testing to see if there are any underlying viruses that might be attributing …

#15 Be Positive

November 22, 2021 3 Comments

One of the biggest “kick in the nuts” the universe can hit you with is the dreaded cancer and here I am telling you to be positive.  It’s easier said than done and I know it.   After doing a little reading about the disease I was afflicted with, my next question was mortality rate.  When …

#16 It’s okay to have bad day

November 22, 2021 0 Comments

We all have bad days.  Even my kids have bad days.  I can remember my mom or dad saying, “well didn’t you wake up on the wrong side of the bed this morning?”  It was always in response to me just being in a foul mood.  Sometimes we know why we’re having a bad day …

3 Tenets

November 22, 2021 0 Comments

I write almost every day.  My goal is a thousand words a day.  That’s almost three pages of single spaced text.  I journal everyday as well.  I’m still trying to find the journal I really like the most.  So far I’m using a simple journal from Amazon, one from BestSelf, and another from Monk Journal.  …

Day +52

November 22, 2021 0 Comments

Two days ago marked the halfway point to Day +100.  At Day +100 they’ll do another bone marrow biopsy to determine how well things are progressing.  While I’ve had a few tests done in the meantime and things look promising, nothing is definitive yet.  I’ve been disappointed often enough and have seen things go sideways …

BMT Day +44

November 15, 2021 4 Comments

An actual update. I’ve been home for a total of 25 days. In some ways it seems like a lot and other ways it seems like I just left the hospital. I’m slowly starting to feel a bit better each day. Some days are better than others. Everybody wants to know how I’m feeling and …

#17 One Day at a Time

November 11, 2021 0 Comments

During one of my hospital stays, I was getting ready for bed.  I had flossed and brushed my teeth.  I had moisturized my nose (I was having frequent nose bleeds if I wasn’t constantly taking care of it).  As I laid down, I noticed what felt like a knot in my back.  If you’ve ever …

Strength is a cure

November 11, 2021 0 Comments

I had this strange idea.  I’ve been doing strength training for over 25 years.  Picking up something heavy isn’t something I just give up because my situation has changed.  What it does though is give me an edge in working through my current diagnosis and it’s subsequent ordeal.  I might not be deadlifting 600lbs right …