I write almost every day. My goal is a thousand words a day. That’s almost three pages of single spaced text. I journal everyday as well. I’m still trying to find the journal I really like the most. So far I’m using a simple journal from Amazon, one from BestSelf, and another from Monk Journal. …
These first 2 days are chemo days. My chemo conditioning consists of busulfan. Evidently it’s pretty harsh. Everything starts bright and early at 8am. Where they started chemo. It takes about 3 hours so I’m hooked up from 8am until 11am. Thankfully no more IV after that but that’ll change around Day -3 when I …
I woke up like I had every day this morning, just trying Amy get the girls off to school with as little trouble as possible. They were coming home at noon to see me off and so that Amy could take me to the hospital make sure I had everything needed. Like the day before, …
After the results came back from my bone marrow biopsy, the doctors were ready to get me admitted. Just had to jump through a few more hoops. September 20, 20121 I had 4 appt. across 3 different buildings. It was quite the morning. First at 7am was my pulmonary function test. One of the chemos …
I finally get a pain in my ass! Been looking forward to this for a week, or more. Well, not really the pain but eager to see how this most recent chemo was treating me. As I described in my last blog post, the blasts were too high to go to transplant so I had …
Tuesday September 7th, I was scheduled to have a bone marrow biopsy. We have to check my current level of blasts in the marrow. Blasts or myeloblasts are the most immature cells. Generally having a blast level of 20% or more is an indication of acute leukemia. Prior to my first round of chemo (Vyxeos) …
It’s easy to get caught up in the whirlwind of people helping to manage your care. Your spouse, general practitioner, oncologist, nurse practitioner, siblings, pharmacist, children, even your neighbors, friends, and family can all be trying to help you in some form or fashion. Much of the help is greatly appreciated and highly needed. With …
Just like that, just out of reach. Here we were actually thinking that maybe, just maybe, we could get an admission date sooner than the 11th. We were slightly worried that we wouldn’t be ready for admission to the hospital. The results from my bone marrrow biopsy came back and however unfortunate, my blasts were …
It’s called “practicing gratitude.” Why? Because it doesn’t come naturally or easily all the time. There are some days where it’s just a fucking pain in the ass. You feel that the whole world is against you. Typical case of Mondays where you’ve spilled your coffee, a nail caught your shirt and ripped a small …
Recently I decided to change the context of the website/blog that was LCS. With covid and my diagnosis, my priorities have shifted a bit. Well, in trying to do that, I royally fucked my site. So, here we are again starting over. I figure I work and build on this while I’m in the hospital. …
