Tales from my adventures with leukemia.
VOY Kickoff Visionaries look to the future–and see infinite possibility. They challenge the status quo–and make the impossible possible. They boldly imagine a better world–and lead the charge to create it. I was nominated as a Visionary of the Year. I am campaigning to raise money to help those in need that just like I …
Life if funny post-cancer. (I hope I can call it “post-cancer”, I’m only a few months into being in remission so I use that term loosely.) I struggle daily to figure out who I am. The things I used value in myself are different now. I could work like a madman. There would be days …
I want to take a trip back and start before my leukemia diagnosis. I want to point out what “might” have been early signs. There’s no real way of knowing but I certainly have a better idea looking back than I did in the moment. Going back through family pictures or the pictures/videos on my …
From the Mayo Clinic website: “Chemo brain is a common term used by cancer survivors to describe thinking and memory problems that can occur during and after cancer treatment. Chemo brain can also be called chemo fog, cancer-related cognitive impairment or cognitive dysfunction.” I’ve honestly been too focused on the physical aspects of recovery that …
I had no idea that was one word until I typed it out on here. Bloodletting. That’s the next thing for me. Over the past several weeks my liver numbers have been creeping up and at one point spiked up fairly significantly. At first we thought it might be graft vs host disease. A little …
Today I was going into the clinic to have my EVUSHELD covid shot. Being still relatively immuno-compromised any extra layer of protection can help. EVUSHELD is a relatively new drug and is only been granted Emergency Use Authorization (EUA) because currently it is not FDA approved. I figured with all the hell I’ve been through, …
Had my Day +100 post transplant bone marrow biopsy. I started my day at 4am. Through the scheduled week, today was my day to squat. I knew that post biopsy squatting would be out of the question so I got up an hour and a half earlier to make sure I got the important parts …
Chimerisms. In Greek Mythology there was a monster that was comprised of three or more monsters. Usually it had the head of a lion, the body of a goat, the wings of a dragon, and a tail that was a snake with the head coming out of the end. THere’s many variations of this creature …
My original admission date for my bone marrow transplant date had been set for May the 4th (the force was obviously not with me). I had set my last day of work and was going to take a few days to pack and spend with family before I embarked on a thirty day stay in …
Yesterday was Day +60 from my bone marrow transplant (BMT). We’ll retest my chimerisms to see how well the engraftment is going and hopefully see some improvement in my T-cell percentages. My platelets have dropped a bit so there has been some testing to see if there are any underlying viruses that might be attributing …
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