A year of a 1000 pictures

January 13, 2023 0 Comments

I want to take a trip back and start before my leukemia diagnosis. I want to point out what “might” have been early signs. There’s no real way of knowing but I certainly have a better idea looking back than I did in the moment. Going back through family pictures or the pictures/videos on my …

Chemo Brain

May 4, 2022 0 Comments

From the Mayo Clinic website: “Chemo brain is a common term used by cancer survivors to describe thinking and memory problems that can occur during and after cancer treatment. Chemo brain can also be called chemo fog, cancer-related cognitive impairment or cognitive dysfunction.” I’ve honestly been too focused on the physical aspects of recovery that …

Bloodletting

May 3, 2022 0 Comments

I had no idea that was one word until I typed it out on here.  Bloodletting.  That’s the next thing for me.  Over the past several weeks my liver numbers have been creeping up and at one point spiked up fairly significantly.  At first we thought it might be graft vs host disease.  A little …

Anxiety

January 24, 2022 0 Comments

Today I was going into the clinic to have my EVUSHELD covid shot. Being still relatively immuno-compromised any extra layer of protection can help. EVUSHELD is a relatively new drug and is only been granted Emergency Use Authorization (EUA) because currently it is not FDA approved. I figured with all the hell I’ve been through, …

Day +103 BMB

January 12, 2022 5 Comments

Had my Day +100 post transplant bone marrow biopsy. I started my day at 4am. Through the scheduled week, today was my day to squat. I knew that post biopsy squatting would be out of the question so I got up an hour and a half earlier to make sure I got the important parts …

BMT Day +68

December 8, 2021 0 Comments

Chimerisms.  In Greek Mythology there was a monster that was comprised of three or more monsters.  Usually it had the head of a lion, the body of a goat, the wings of a dragon, and a tail that was a snake with the head coming out of the end.  THere’s many variations of this creature …

#11 Be Flexible

December 2, 2021 0 Comments

My original admission date for my bone marrow transplant date had been set for May the 4th (the force was obviously not with me).  I had set my last day of work and was going to take a few days to pack and spend with family before I embarked on a thirty day stay in …

60 days post transplant

December 1, 2021 4 Comments

Yesterday was Day +60 from my bone marrow transplant (BMT).  We’ll retest my chimerisms to see how well the engraftment is going and hopefully see some improvement in my T-cell percentages.  My platelets have dropped a bit so there has been some testing to see if there are any underlying viruses that might be attributing …

3 Tenets

November 22, 2021 0 Comments

I write almost every day.  My goal is a thousand words a day.  That’s almost three pages of single spaced text.  I journal everyday as well.  I’m still trying to find the journal I really like the most.  So far I’m using a simple journal from Amazon, one from BestSelf, and another from Monk Journal.  …

Day +52

November 22, 2021 0 Comments

Two days ago marked the halfway point to Day +100.  At Day +100 they’ll do another bone marrow biopsy to determine how well things are progressing.  While I’ve had a few tests done in the meantime and things look promising, nothing is definitive yet.  I’ve been disappointed often enough and have seen things go sideways …