Day +103 BMB

January 12, 2022 5 Comments

Had my Day +100 post transplant bone marrow biopsy. I started my day at 4am. Through the scheduled week, today was my day to squat. I knew that post biopsy squatting would be out of the question so I got up an hour and a half earlier to make sure I got the important parts …

60 days post transplant

December 1, 2021 4 Comments

Yesterday was Day +60 from my bone marrow transplant (BMT).  We’ll retest my chimerisms to see how well the engraftment is going and hopefully see some improvement in my T-cell percentages.  My platelets have dropped a bit so there has been some testing to see if there are any underlying viruses that might be attributing …

3 Tenets

November 22, 2021 0 Comments

I write almost every day.  My goal is a thousand words a day.  That’s almost three pages of single spaced text.  I journal everyday as well.  I’m still trying to find the journal I really like the most.  So far I’m using a simple journal from Amazon, one from BestSelf, and another from Monk Journal.  …

#17 One Day at a Time

November 11, 2021 0 Comments

During one of my hospital stays, I was getting ready for bed.  I had flossed and brushed my teeth.  I had moisturized my nose (I was having frequent nose bleeds if I wasn’t constantly taking care of it).  As I laid down, I noticed what felt like a knot in my back.  If you’ve ever …

There’s too many gurus or self-proclaimed “experts”

November 5, 2021 0 Comments

It’s not so hard for me to remember being a kid and having that overwhelming sense of accomplishment and winning whenever I’d learn something new.  I had just found out that the sound of thunder was actually caused by the shock wave of the now heated and rapidly expanding air molecules hitting the cooler molecules.  …

9/23 (Day -7) and 9/24 (Day -6)

September 29, 2021 0 Comments

These first 2 days are chemo days. My chemo conditioning consists of busulfan. Evidently it’s pretty harsh. Everything starts bright and early at 8am. Where they started chemo. It takes about 3 hours so I’m hooked up from 8am until 11am. Thankfully no more IV after that but that’ll change around Day -3 when I …

Almost there

September 29, 2021 0 Comments

After the results came back from my bone marrow biopsy, the doctors were ready to get me admitted. Just had to jump through a few more hoops. September 20, 20121 I had 4 appt. across 3 different buildings. It was quite the morning. First at 7am was my pulmonary function test. One of the chemos …

You are part of your health team

August 18, 2021 0 Comments

It’s easy to get caught up in the whirlwind of people helping to manage your care. Your spouse, general practitioner, oncologist, nurse practitioner, siblings, pharmacist, children, even your neighbors, friends, and family can all be trying to help you in some form or fashion. Much of the help is greatly appreciated and highly needed. With …

Getting Started

July 3, 2021 0 Comments

Recently I decided to change the context of the website/blog that was LCS. With covid and my diagnosis, my priorities have shifted a bit. Well, in trying to do that, I royally fucked my site. So, here we are again starting over. I figure I work and build on this while I’m in the hospital. …