September 29, 2021 0 Comments

9/22/21 The only thing I had this day was a Covid test and a follow up with the dental surgery team. I’d had a ulcer in my mouth that they were keeping a watch one. But as we got closer to the my admission date it thankfully had gone away. With dental surgery being the …

Lab work and blood

September 29, 2021 0 Comments

I thought I was just going in to have a quick chat with Laura, the nurse practitioner for Dr Baratam, but turns out I needed a blood transfusion too. So what was supposed to be a quick morning, turned in to a half a day event. Blood work at 7am. Visit with Laura at 8am. …

Almost there

September 29, 2021 0 Comments

After the results came back from my bone marrow biopsy, the doctors were ready to get me admitted. Just had to jump through a few more hoops. September 20, 20121 I had 4 appt. across 3 different buildings. It was quite the morning. First at 7am was my pulmonary function test. One of the chemos …

Finally a BMB

September 15, 2021 0 Comments

I finally get a pain in my ass! Been looking forward to this for a week, or more. Well, not really the pain but eager to see how this most recent chemo was treating me. As I described in my last blog post, the blasts were too high to go to transplant so I had …

The BMB that didn’t happen

September 10, 2021 0 Comments

Tuesday September 7th, I was scheduled to have a bone marrow biopsy. We have to check my current level of blasts in the marrow. Blasts or myeloblasts are the most immature cells. Generally having a blast level of 20% or more is an indication of acute leukemia. Prior to my first round of chemo (Vyxeos) …

Remainder of my Hospital Stay

September 8, 2021 0 Comments

It was relatively short lived and uneventful. I didn’t have any nose bleeds. They never found out what caused the fever and it was more than likely a result of just low neutropenic counts. The most difficult thing I had going on was that my throat was very sore and borderline painful. I had some …

3rd Hospital Stay, Day 1

August 23, 2021 0 Comments

What started out as a pretty good morning quickly ended up getting the better of me.

My earliest symptoms

August 20, 2021 0 Comments

I’ve talked already about my diagnosis and how I find out, but going back even further than that I can start to see where it began. Back inn 2019, I worked for 10+ hours in a gym with little to no A/C. In all reality, I didn’t mind it. It built resilience. There’s just something …

You are part of your health team

August 18, 2021 0 Comments

It’s easy to get caught up in the whirlwind of people helping to manage your care. Your spouse, general practitioner, oncologist, nurse practitioner, siblings, pharmacist, children, even your neighbors, friends, and family can all be trying to help you in some form or fashion. Much of the help is greatly appreciated and highly needed. With …

Vyxeos, Round 2

August 16, 2021 0 Comments

Round 2: It all really started with a little excitement that I might be getting everything ready to go to transplant.  On August 3rd, I got my PICC line out and my port put in.  The idea was that I had an admission date of 8/11 to get my transplant process started.  On July 30th I’d had a …