Day +52

November 22, 2021 0 Comments

Two days ago marked the halfway point to Day +100.  At Day +100 they’ll do another bone marrow biopsy to determine how well things are progressing.  While I’ve had a few tests done in the meantime and things look promising, nothing is definitive yet.  I’ve been disappointed often enough and have seen things go sideways …

Strength is a cure

November 11, 2021 0 Comments

I had this strange idea.  I’ve been doing strength training for over 25 years.  Picking up something heavy isn’t something I just give up because my situation has changed.  What it does though is give me an edge in working through my current diagnosis and it’s subsequent ordeal.  I might not be deadlifting 600lbs right …

Remainder of my Hospital Stay

September 8, 2021 0 Comments

It was relatively short lived and uneventful. I didn’t have any nose bleeds. They never found out what caused the fever and it was more than likely a result of just low neutropenic counts. The most difficult thing I had going on was that my throat was very sore and borderline painful. I had some …

3rd Hospital Stay, Day 1

August 23, 2021 0 Comments

What started out as a pretty good morning quickly ended up getting the better of me.

My earliest symptoms

August 20, 2021 0 Comments

I’ve talked already about my diagnosis and how I find out, but going back even further than that I can start to see where it began. Back inn 2019, I worked for 10+ hours in a gym with little to no A/C. In all reality, I didn’t mind it. It built resilience. There’s just something …

You are part of your health team

August 18, 2021 0 Comments

It’s easy to get caught up in the whirlwind of people helping to manage your care. Your spouse, general practitioner, oncologist, nurse practitioner, siblings, pharmacist, children, even your neighbors, friends, and family can all be trying to help you in some form or fashion. Much of the help is greatly appreciated and highly needed. With …

Vyxeos, Round 2

August 16, 2021 0 Comments

Round 2: It all really started with a little excitement that I might be getting everything ready to go to transplant.  On August 3rd, I got my PICC line out and my port put in.  The idea was that I had an admission date of 8/11 to get my transplant process started.  On July 30th I’d had a …

Round 2, Day 2

August 8, 2021 0 Comments

Up bright and early on a Sunday morning to get my 2nd round of Vyxeos chemo. There’s definitely a few side effects I’ve noticed. Of course fatigue ranks up there. Lots of heart burn and burping. Weird symptoms I know but something that’s unusual for me. Sleeping is the worst though. I have hot flashes, …

Just out of reach

August 6, 2021 0 Comments

Just like that, just out of reach. Here we were actually thinking that maybe, just maybe, we could get an admission date sooner than the 11th. We were slightly worried that we wouldn’t be ready for admission to the hospital. The results from my bone marrrow biopsy came back and however unfortunate, my blasts were …

It’s called Practice

August 5, 2021 0 Comments

It’s called “practicing gratitude.” Why? Because it doesn’t come naturally or easily all the time. There are some days where it’s just a fucking pain in the ass. You feel that the whole world is against you. Typical case of Mondays where you’ve spilled your coffee, a nail caught your shirt and ripped a small …